Since learning about getting a stoma, I have had a ton of support! People are so caring about it. I am not going to be disabled tho - I won't let it. I feel really positive about it, because I am so sick of running to the toilet and feeling the horrible bubbling sensation in my rectum. I am going to be so happy to get rid of the fistulas too.. They really slow down life a lot. In the end it's down to this : a stoma is a hole I can have control over. You never know what fistulas are going to do or say (lol, I really mean that... It is the funniest voice ever :D).
I have so many questions though! The one I am most worried about is will I be able to sleep or lie on my tummy?! How tiny does that seem compared to "how many times do I need to rush to the loo each night and hope I haven't sharted?".
I am also a little worried that new zealand won't be so up to par with all the new bags and flanges and stuff... And where do they come from?
Can u buy them on the net?
Are those ostomy undies worth the money?
Do the ostomy silencers actually work?
How many times a day do I need to empty my bag?
Does it make it harder having a bag, if you have a larger belly?
I don't know... It would be nice to have some answers.
I am actually going to see the stoma nurse on Friday, then I am meeting up with a lady who has one so I can ask questions.
In other news, I am going to vancouver for two weeks in 9 days ! Mum and I were going to go later this year but thought it would be better before my op. My sister lives over there so we will stay with her. So excited! Just a little scared I will get sick.. As I am completely off my humira from now till the op, and it does cover some of the pain.
Ah well. Pain killers I guess :)
Anyway would love to hear from you if you have a bag!
Xxxx
- Lotte x
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